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Alzheimer’s disease is called a family disease because the ongoing stress of watching a loved one decline has a destructive effect on everyone. Problems with memory and behavior can come with additional challenges for family members and caregivers. The job of a caregiver is 24/7 and the work is never done. It is okay to ask for help and, in caregiving, taking care of yourself is one of the most important things you can do. Building a support system is the best way to ensure the needs of everyone in your family are being met.
When my father was diagnosed with Alzheimer’s, one of the best things we did was to hire a health advocate who works with elderly patients. While this was an initial expense, it was easily offset by the resources she was able to obtain for us – activities and benefits we were unaware even existed.
They included:
Building a support system is the best way to ensure the needs of everyone in your family are being met.
She also made recommendations like switching his primary care provider from a general practitioner to one who specializes in geriatric care. She also helped my mom file as his healthcare proxy and obtain power of attorney.
While our advocate concentrated on opening care resources for my father, my brother and I began to look for local support groups for my mother and for ourselves.
Finding local groups was tremendously helpful, especially for my mother who benefited from connecting with other primary caregivers her age.
Here’s how we were able to get my mother connected locally:
We also found many online resources helpful, especially for my brother who lives out of the country.
Our team at BRIGHT focuses on family and caregiver needs. Everything we do is in the service of families battling Alzheimer’s disease and those who want to prevent it. We hope this is a helpful resource for you and your family.
Read our other articles about caregiving here.
A doctor-recommended light therapy that rejuvenates brain function leading to remarkable health benefits. Choose a light system that fits effortlessly into your daily routine.
A 4-light system to fits into common areas like lounges, game rooms, or libraries where groups of people experience the lights and move freely about the spaces. The lights are synchronized to fill large rooms with safe, rejuvenating light to complement daily routines and planned activities.
Our synchronized 2-light system is best for larger rooms and shared spaces like family rooms and offices. Set them up on either side of the TV and turn them on while you’re watching your favorite programs. Or set them on conference tables or end tables for daily meetings. Think of them like a candle that casts glimmering light to improve concentration and executive function.
We designed Beacon40 Personal to fit into any home or office. Turn it on for at least one hour a day and experience the passive therapy of rejuvenating 40Hz light. Use them in any room at home while you answer emails, during meals or while you go about your daily routines. Use voice controls to set your personal preferences including tone, brightness and schedule.